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You are here: Home / Uncategorized / Co-Pay Accumulator is Signed!

Co-Pay Accumulator is Signed!

September 2, 2021

CT State CapitolWe Did It!!

On June 2, 2021, Governor Ned Lamont signed SB 1003,  An Act Prohibiting Certain Health Carriers and Pharmacy Benefits Managers From Employing Copay Accumulator Programs, effective January 1, 2022

Those of us in the rare disease community in CT have been working on this bill for four years, and I will admit I had tears rolling down my cheeks as I watched the vote on CT-N on my cable. A legislator stood up and told the story of a woman she represented who required regular infusions to treat pulmonary hypertension that were outrageously expensive, as most of our life-sustaining medications are. 

What is a Co-Pay Accumulator?

If a co-pay accumulator is in place, any assistance a patient receives to help cover the cost of the deductible or out-of-pocket costs for medications (typically infusions) must now be applied to the patient (parent)’s financial responsibility. 

Thank you, Connecticut legislators, for listening to our stories and learning how important this support is to us. Your work makes us the 9th state to protect residents with rare, life-threatening conditions. 

 

 

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Filed Under: Uncategorized

Save the Date!

Next CT Zebras Meeting – Virtual 
We have taken the summer off, and will let you know when our first fall meeting is. We usually meet just after dinner.

Please join us! Our meetings are open to people who are living with primary immune deficiency, are in the process of diagnosis, and the people who love them.

Click here  to sign up and we’ll let you know as soon as we have a date.

 

CT Rare Action Network (CT-RAN)              During the legislative session, advocates from many disease groups meet to discuss legislative priorities and make sure they align. Check back to learn when the meetings will start this fall. All are welcome!

 

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