We Did It!!
On June 2, 2021, Governor Ned Lamont signed SB 1003, An Act Prohibiting Certain Health Carriers and Pharmacy Benefits Managers From Employing Copay Accumulator Programs, effective January 1, 2022
Those of us in the rare disease community in CT have been working on this bill for four years, and I will admit I had tears rolling down my cheeks as I watched the vote on CT-N on my cable. A legislator stood up and told the story of a woman she represented who required regular infusions to treat pulmonary hypertension that were outrageously expensive, as most of our life-sustaining medications are.
What is a Co-Pay Accumulator?
If a co-pay accumulator is in place, any assistance a patient receives to help cover the cost of the deductible or out-of-pocket costs for medications (typically infusions) must now be applied to the patient (parent)’s financial responsibility.
Thank you, Connecticut legislators, for listening to our stories and learning how important this support is to us. Your work makes us the 9th state to protect residents with rare, life-threatening conditions.