The Immune Deficiency Foundation is dedicated to improving the diagnosis, treatment and quality of life of persons with primary immune deficiencies, their families and loved ones.
Rare Action CT, the state affiliate for NORD, supports persons with rare diseases in the state, monitors legislative and state agency activity, and advocates for all persons with rare diseases in Connecticut.
The National Organization for Rare Disorders is a patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them
The Jeffrey Modell Foundation was established in the early 1990s in tribute to their 15-year-old son who died of infection related to his hypogammaglobulinemia. The Foundation funds research on primary immune deficiency worldwide and supports patients with PI.
These companies manufacture and provide immunoglobulin replacement drugs.
The Immune Deficiency Foundation has a list of all manufacturers’ assistance plans here.
State of Connecticut
State of Connecticut Insurance Department: Health Insurance
- Approved plans in CT
- Medicare (& supplement)
- Access Health CT (the Exchange options)
- Behavioral health
- Medical discount plans
- Consumer resources, including rate filings
CT Zebras Connecticut Health Insurance Guide
CT Zebras has a guide to health insurance provided in the state, links to insurers’ rules for coverage, tips and a worksheet here