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For persons with primary immunodeficiency and those who love them

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You are here: Home / IDF / Congratulations to CT Zebras!

Congratulations to CT Zebras!

December 13, 2019

Congratulations are in order for CT Zebras — the most successful fundraising team at the 2019 Walk for PI Community Walk in Warwick, RI. While we particpated remotely with our New England sister and brother zebras, we are sincerely thankful for our generous members and friends!

Lois Crudden, Zebra Extraordinare, set up this first IDF Walk in New England outside of Boston. Tremendous job, Lois! You can count on our support next year.

IDF Walk for Primary Immunodeficiency (PI), an initiative of the Immune Deficiency Foundation, unites all members of the PI community to help create better lives for those living with these rare, chronic diseases. The dollars raised by IDF Walk for PI ensure that IDF can continue to provide educational resources and programs at no cost to individuals and families, power critical patient-focused research that will ultimately lead to cures of all types of PI, lead the way in the fight to improve diagnosis and access to treatment, and bring together the entire PI community to remind them that they are not alone.

If you were not part of Team CTZebras in 2019, we’ll be looking for you in 2020!

Filed Under: IDF, Fundraising Tagged With: #fundraising, #IDF, #Walk for PI, Warwick RI Walk

Save the Date!

Next CT Zebras Meeting – Virtual 
We have taken the summer off, and will let you know when our first fall meeting is. We usually meet just after dinner.

Please join us! Our meetings are open to people who are living with primary immune deficiency, are in the process of diagnosis, and the people who love them.

Click here  to sign up and we’ll let you know as soon as we have a date.

 

CT Rare Action Network (CT-RAN)              During the legislative session, advocates from many disease groups meet to discuss legislative priorities and make sure they align. Check back to learn when the meetings will start this fall. All are welcome!

 

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